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The AMR Narrative

How can an AMR infodemic impact patients and the public

How can an AMR infodemic impact patients and the public

Info

 

Joining Details


Moderator: Natalie Vestin (@CIDRAP_ASP) and Vanessa Carter (@theAMRnarrative)
Date: 28 November 2023
Where: X.com (Previously Twitter)
Time: 4 pm GMT
Hashtag: #theAMRnarrative

How to participate:
Join us for a 60-minute dialogue on X with our panel experts. All stakeholders are welcome.

Start your answers with T1, T2, T3, T4, or CT for transcript purposes.
Answer only after the moderator prompts. Questions will be prompted every 10 minutes but keep answers coming using the relevant T and number. Both panel experts and the public are encouraged to answer.

Use the #theAMRnarrative hashtag in all your posts so that you are visible to others in the chat and captured on the transcript.

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Overview

In our digital age, information flows at an unprecedented rate, and misinformation spreads like wildfire. The COVID-19 pandemic highlighted the term “infodemic,” describing the excessive proliferation of unverified or misleading information, often through social media and online channels. While infodemics typically revolve around public health crises, their effects extend beyond immediate concerns, influencing various health-related issues, including Antimicrobial Resistance (AMR).

Before delving into how the infodemic affects AMR, let’s define what an infodemic is. It’s characterised by the rapid dissemination of information, both accurate and false, which can make it challenging for people to find trustworthy sources and make informed decisions. The infodemic may lead to panic, misinformation, and mistrust in authoritative sources, making it a breeding ground for public health issues.

The interplay between the infodemic and AMR is multifaceted. Misuse of antibiotics is one of the most direct ways the infodemic impacts AMR, as it spreads misinformation about antibiotic use, encouraging misguided advice, self-diagnosis, and quack remedies that lead to the improper use of antibiotics. Trust erosion occurs when contradictory information abounds during an infodemic, causing people to question healthcare authorities, resulting in scepticism about antibiotic guidelines and recommendations, and contributing to non-compliance with prescribed treatments. Additionally, alternative therapies gain popularity during an infodemic, promising quick cures for infections and leading people to opt for unverified remedies over proper medical care, potentially delaying the administration of appropriate antibiotics.

To address the adverse impact of the infodemic on AMR, several strategies are crucial. Enhancing health literacy is essential to help the public distinguish reliable information from misinformation, promoting education about responsible antibiotic use and the dangers of AMR. Ensuring communication transparency, with healthcare authorities maintaining open and clear communication with the public, is essential for countering the influence of misleading narratives. Media outlets and social media platforms must shoulder social responsibility by curbing the spread of false health information, implementing fact-checking mechanisms, and promoting verified sources to reduce the infodemic’s impact. Encouraging healthcare professionals to actively engage with patients, addressing their concerns and providing accurate information about AMR, helps build trust and ensures proper antibiotic use.

When patients’ lives are at stake, trustworthy information is crucial and all of us can play a role, including health authorities and professionals, charities, community leaders, patient, and public advocates.

 

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Questions:
– Introductions first
T1: How would you define an infodemic?
T2: Why do you think focusing on the AMR infodemic is important to patients and the public?
T3: Have you heard of or seen any misinformation, myths or fake news related to AMR which could impact patients’ lives and the public?
T4: Why are different stakeholders important to fighting the AMR infodemic for patients and the public? (e.g., charities, patients, advocates, health professionals)
T5: How do you think storytelling and sharing personal experiences could impact the AMR infodemic?
CT: Any thoughts you would like to add about how an AMR infodemic can impact patients’ lives and the public?

 


How to participate:

1. The session will be in a text format
2. To join, login to X.com (Previously Twitter) and search for the hashtag #theAMRnarrative making sure to select “latest” in the top bar so that the stream of posts comes up. Refresh the latest posts again if you leave the stream and return.
3. We start with introductions for the first few minutes. Tell us who you are and what you do.
4. Questions will be prompted every 10 minutes. Start your answers with the relevant T and number and always end with the hashtag #theAMRnarrative
5. The session can move quite quickly if many people take part, therefore we advise our guests to prepare answers in advance. The questions can be viewed above
6. First and foremost, it’s the use of the hashtag that makes a dialogue like this work. Watch out for spelling mistakes and remember “the” – (i.e., #theAMRnarrative not #AMRnarrative

 

More can be read about this event at CIDRAP website here.

Notes: Prior to the event, review the University of Minnesota’s Social Media House Rules for a code of conduct applicable to this event.

Info
Category: ,
Location: X.com
Date: November 28, 2023
Duration: 1 Day
Cameron Prior

Cameron Prior

BVSc MSc PgCert CertAVP DipECVIM-CA MRCVS

RCVS Recognised Specialist in Small Animal Medicine

Cameron is a European Diplomate in Small Animal Internal Medicine. Passionate about fungal disease, antimicrobial stewardship, endocrinopathy, and facilitating multiple studies to enhance the evidence base of veterinary medicine. Keen to build collaborative projects with colleagues across Europe and to promote clinical research in practice.

Abi Mc Alester

Abi Mc Alester

I am a graduate from the National University of Galway with an Honours BSc in Pharmacology, and a recent graduate from Maynooth University with a MSc in Immunology & Global Health. Throughout university, I was an active member of the Global Health Network, which was a student-led group focusing on health, equity, and international development. Here is where I became interested in the global impact of AMR and the multiple factors that influence its spread. I chose to focus my studies on the mechanisms behind resistance and vaccination design; however, I understand that in order to have a global impact, there needs to be global awareness.

The AMR Narrative provides lived experiences and stories from those affected by resistance, something I believe is so important and why I wanted to help share these stories on social media. Translating scientific knowledge into digestible and understandable language is critical for fighting resistance.

Nduta Kamere

Nduta is a global health pharmacist and AMR consultant recognised for her leadership in antimicrobial stewardship, One Health, and healthcare equity. She has shaped AMR strategies and advanced healthcare accessibility across Africa, with a significant portfolio that includes contributions to the Commonwealth Partnerships for Antimicrobial Stewardship (CwPAMS) programmes. As Technical Lead, she oversaw the co-development of the Quadripartite Antimicrobial Resistance Toolkit for Youth Engagement, now used globally to drive advocacy and behaviour change.

Her expertise spans supply chains, pricing, and substandard and falsified medicines, and her research is published in the WHO Bulletin and peer-reviewed journals, informing regional and global AMR policy and practice.

Dr Marie-Anne Bouldouyre

Dr Marie-Anne Bouldouyre is an infectious diseases physician and hospital practitioner in Paris. Twelve years of clinical work in a suburban hospital shaped her understanding of access to care, patient relationships, and the daily reality of antimicrobial resistance.

Since 2022, she has led the Regional Antibiotic Stewardship Centre in Île-de-France and coordinates the national network, working with a multidisciplinary team to promote responsible antibiotic use and strengthen collaboration among healthcare professionals. She also continues to manage complex infections at Saint-Louis Hospital.

Convinced that antimicrobial resistance cannot be tackled by healthcare workers alone, she advocates for the active involvement of patients : understanding, questioning, and taking part in decisions about antibiotics. Their stories are essential to making this issue visible and concrete.

She is proud to collaborate with initiatives such as The AMR Narrative and hopes to foster similar projects in France to give patients a voice in this shared fight.

Dr Erva Cinar

Dr Erva Cinar is a London based paediatric resident doctor and clinical researcher with interest in infectious diseases.

She is currently completing a Master’s in Public Health at the London School of Hygiene & Tropical Medicine. Through the World Medical Association’s Junior Doctor’s Network (WMA-JDN) AMR Working Group, she engages in policy and advocacy on antimicrobial resistance and stewardship at global level.

Alongside her clinical and academic roles, she works with the Royal College of Paediatrics and Child Health (RCPCH) and the International Child Health Group (ICHG); leads on organising teaching resources and educational events to improve research skills for UK paediatric trainees and for global child health professionals.

Hamu Madzedze

Hamu Madzedze is a seasoned Zimbabwean journalist with over 15 years’ experience.

She previously worked for the Zimbabwe Broadcasting Corporation as a reporter and sub-editor, before establishing an independent website, 365HealthDiaries, which focuses on health and gender issues.

She holds a BA in Media Studies and a BA (Special Honours) in Communication and Media from the Zimbabwe Open University, as well as a diploma from the Christian College of Southern Africa.

Her work has been recognised with several awards, including the Global AMR Special Mention Award (2024), the Sexual Health Rights and Equity Fellowship Special Mention Award (2025), and the Merck Foundation Award (2024) for outstanding coverage of health issues, gender, infertility, and genital mutilation, where she achieved third position in the Online Category.

Hamu is passionate about addressing AMR through the media.

Jomana F. Musmar

Dr. Jomana Musmar is a distinguished global policy expert and proactive leader with over fifteen years of government experience in strategic planning, operational design, and policy execution. Renowned for simplifying complex topics with expertise and diplomacy, she has spearheaded innovative solutions to global health challenges, shaped impactful policies, and advanced national and international missions.

As the Executive Director of the Presidential Advisory Council on Combating Antibiotic-Resistant Bacteria, she established and led the council’s operations, liaising with over 600 experts, worldwide, across government, industry, and academia. Her efforts culminated in the development of critical recommendations addressing antimicrobial resistance and interrelated One Health issues, influencing both domestic and global health strategies.

In her tenure as Deputy Director of Strategic Initiatives for the Office of Infectious Diseases and HIV/AIDS Policy, at the US Department of Health and Human Services, Dr. Musmar oversaw the formulation and implementation of national health strategies for vaccines and a range of infectious diseases including HIV/AIDS and viral hepatitis. Her leadership and technical expertise facilitated groundbreaking policies during national emergencies, including responses to the COVID-19 pandemic, and initiatives to combat congenital syphilis and childhood vaccination disruptions. Dr. Musmar holds a Ph.D. in Biodefense from George Mason University, a Master’s degree in Biomedical Science policy and Advocacy from Georgetown University, and is a Lean Six Sigma Black Belt. Fluent in English and Arabic, she is a sought-after speaker and advisor, having represented the United States at premier global health conferences.

Her published works on antimicrobial resistance, pandemic preparedness, and national health security underscore her reputation as a thought leader and innovator in public health and biodefense.

Chris Shaffer

Chris Shaffer was a music, special education teacher, and high school principal for 45 years. At the end of his educational career, he was thrust into the world of AMR infections when a number of abdominal surgeries left him with an E-coli infection which failed to respond to antibiotics. After doctors in the USA left him with little hope for a cure, diminishing health, and a bleak prognosis, he set out on his own.

Chris found success in phage therapy at the Eliava Phage Therapy Center in Tbilisi, Georgia. With phage therapy giving Chris his life back, he has dedicated his retirement years to advocating for and helping raise awareness of phage therapy used for AMR infections. He tells the story of his phage journey in a book titled, Finding Phage: How I Partnered with a Friendly Virus to Cure My Deadly Bacterial Superinfection. His website, phagetherpyusa.com helps others learn to understand the healing power of phage therapy.

Demi Christofi

Demi is an Associate Scientific Director at a medical communications agency, with a background in microbiology and a longstanding focus on antimicrobial resistance. She holds an MSc in Microbiology, where she first became interested in the global challenge of resistance and the need to bring scientific understanding to wider audiences.

Demi’s career has centred on a simple but powerful belief: that how we communicate science matters. Her work focuses on making complex data clear, engaging, and accessible – whether for healthcare professionals, policy makers, or the patients most affected by infection and resistance. She has contributed to a wide range of AMR-focused projects, including educational programmes, congress communications and stewardship initiatives.

A central thread in Demi’s work is the importance of the patient voice. She is passionate about making sure real-world experiences of treatment failure, recurrent infections, and the anxiety surrounding resistance are not lost in the data. She believes that listening to patients and involving them meaningfully is essential for shaping more effective, human-centred responses to AMR.

Demi is also a strong advocate of the One Health approach, recognising AMR as a complex, interconnected issue that spans human health, animal health, and the environment. She is particularly drawn to efforts that move beyond siloed thinking and focus on practical, joined-up solutions.

In 2025, Demi joined The AMR Narrative as an Independent Advisor, where she supports the charity’s mission to centre communication, community, and inclusion in the global AMR response.

Outside of work, she is a Girlguiding unit leader and a qualified yoga teacher. These roles reflect her commitment to care, learning, and creating supportive spaces for others.

Andrea Hartley

Andrea has worked in health communications and campaigning for 3 decades. She is committed to fighting AMR through timely and appropriate communications globally,.

Andrea set up Skating Panda, the creative social and environmental impact consultancy, over a decade ago and drives its impact and growth. Focused on original and lasting public interest communications as well as issue strategy and advocacy, the Panda team has a track record of prompting tipping points in the status quo that drive better social and planetary outcomes.

Andrea’s combination of commercial marketing and development experience with deep issue knowledge have been sought by decision-makers at global summits, corporate and NGO board members, and have enabled her to set up multi-million fundraising platforms and push through policies that change and save lives. 

Andrea is Vice Chair of mothers2mothers, the world’s largest employer of women living with HIV, and a Board Director of Maymessy, a food poverty social enterprise.

A lifelong advocate for gender equality, she played a key role in establishing the UK’s Women’s Equality Party.

Esmita Charani

Professor Esmita Charani is a pharmacist and researcher investigating how we use antibiotics in different cultural and social contexts. She works with teams in the UK, India, and South Africa to develop research programmes investigating all aspects of antimicrobial resistance in human populations with a focus in hospital settings.

She has experience in communicating her research with patients and the public through various media including animations, blogs, and educational videos.