The AMR Narrative

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Privacy Policy

Privacy Policy

The AMR Narrative is committed to protecting its supporters’ personal information.

Who we are

The AMR Narrative is a registered charity in England and Wales (Charity No 1204055).

Our registered office address is Suite 3, Peel House, 30 The Downs, Altrincham, Cheshire,
WA14 2PX

This Privacy Policy relates to information which is obtained by The AMR Narrative and for which The AMR Narrative is the Data Controller.

Why we hold and process supporters’ personal data

  • To keep a record of donations made by our supporters
  • To keep a record of our communications with our supporters
  • To claim Gift Aid on donations
  • To send our supporters information about our work, fundraising activities and where we have their consent or are otherwise allowed to
  • To ensure we do not send unwanted information to those who have informed us they do not wish to be contacted by us

The AMR Narrative will only contact you to keep you up to date about its work, or to tell you about how you can support that work, provided we have your consent, or we are otherwise allowed to do so, for example on the basis of legitimate interest based on your existing relationship with us.

We will not send you information if you tell us that you do not wish to receive it. 

You can update or withdraw your consent at any time, for individual channels of communication, or for all channels.

 

Our website

Our website may at times contain hyperlinks to websites owned and operated by other organisations. These websites have their own Privacy Policies, including policies on their use of cookies. These individual policies will govern the use of any personal information you submit, or which is collected by cookies when you visit these websites. The AMR Narrative cannot accept any responsibility or liability for the privacy practices of such third-party websites and your use of such websites is at your own risk.

 

Cookies

Cookies are small text files stored on your computer by the websites you visit. They are standard across all websites and help website owners deliver a better experience to their users.

Further details about how you can manage cookies on your devices can be found here: www.aboutcookies.org.

The cookies we use on our website are as follows:

1. Google Analytics – Stores the amount of visits of a user, the time of their first visit, the previous visit, and the current visit. It does not contain any personal information and is used only for analytical purposes.  Performance cookies that store where a user came from (e.g. search engine, search keyword, link) as well as geographic location. Used to distinguish between website users in Google Analytics as well as online behaviour using the website. Cookies used to distinguish between website users in Google Analytics.

2. ShareThis – Set as part of the ShareThis service and monitors “click-stream” activity, e.g. web pages viewed, navigation from page to page, time spent on
each page etc. The ShareThis service only identifies a user if they have separately signed up with ShareThis for a ShareThis account and given them
consent. Checks how long you stay on a site: when a visit starts, and ends. It does not contain any personal information and is used only for
analytical purposes.

 

The information we collect

We only collect personal data that is relevant to the type of transactions or interactions you have with us.

When you contact The AMR Narrative to make a donation, or you telephone, email or write to us, or engage with us via social media channels, we may receive and retain personal information about you.

Depending on your reason for contacting us, we may collect details such as your name, postal address, country, affiliation, social media usernames, e-mail address, telephone or mobile number, and any community groups or organisations you belong to.

We may also collect payment details to process donations together with information about whether or not you are a taxpayer to enable us to claim Gift Aid. 

All personal data is stored on a secure database, which only a limited number of individuals can access. It is deleted when it is no longer relevant, is never shared with third parties, and is available to you on request at any time.

How we use your personal information

The AMR Narrative will use your personal information as follows:

  • to process donations
  • to administer donations, e.g., to check payment details; to confirm your tax status with regard to Gift Aid
  • to confirm receipt of donations, to thank you and to provide details of how your donation might be or has been used
  • in relation to correspondence, you have opted into with us by any offline or online channel
  • to enable us to maintain a record of your relationship with us
  • to keep your data up to date
  • to implement any instructions, you give us about withdrawing your consent to send you information
  • to send you information about our work and the ways you can support us


Data security

We ensure that there are appropriate controls in place to protect your personal details.  

Our online forms are always encrypted

We strictly control who has access to the personal information we hold. Our database is only accessible by approved staff

We sometimes use external companies to process personal data on our behalf. We check the security practices of these companies before we work with them and put contracts in place that set out our expectations and requirements, especially regarding how they manage the personal data they collect on our behalf or have access to.  

 

Sharing information with others

We will only use your information within The AMR Narrative for the purposes for which it was obtained. We will not, under any circumstances, share your personal data with any third-party organisation or sell it to them for their own marketing purposes, and you will not receive marketing communications from any other companies, charities or other organisations as a result of giving your details to us.

 

Legal Requests

We will comply with legal requests where disclosure is required or permitted by law (for example to government bodies for tax purposes or law enforcement agencies for the prevention and detection of crime, subject to such bodies providing us with a relevant request in writing).

Processing within the area of jurisdiction

Countries outside the European Economic Area have differing approaches to data privacy laws, and enforcement may not be as robust as it is within Europe’s borders. 

The length of time we retain your personal information

We will hold your personal information on our systems for as long as it is necessary for us to carry out the relevant activity you requested and to which you consented. For example, we will keep a record of donations subject to Gift Aid for at least seven years to comply with HMRC rules. 

If you ask us to stop contacting you, we will keep a record of your request along with your details to enable us to comply with your request over time. 

 

Your communication preferences

We want to ensure that we can communicate with you according to your preferences, and to provide you with information that is of interest to you.

If at any time you want to ask us to stop contacting you, or change how we communicate with you, or update the information we hold about you, please tell us:

  • Write to: Vanessa Carter, 6A Gerston Place, Paignton, Devon, United Kingdom, TQ3 3DX
  • E-mail: privacy@theAMRnarrative.org
  • Call: +44 79 8498 6275

You can opt out of our e-mails at any time by clicking on the ‘Unsubscribe’ link at the bottom of our messages.

Under the terms of the Data Protection Act you have the right to request a copy of the personal information we hold about you and to have any inaccuracies corrected.

  • Please send any information requests to: Vanessa Carter, 6A Gerston Place, Paignton, Devon, United Kingdom, TQ3 3DX

 

Comments or questions about The AMR Narrative’s Privacy Policy

If you have any questions about this Privacy Policy or wish to raise any concerns with us, please:

The UK’s data protection authority is the Information Commissioner’s Office (ICO).

The ICO can be contacted at: https://ico.org.uk/global/contact-us/

 

Changes to our Privacy Policy

The AMR Narrative’s Privacy Policy may be updated from time to time. The latest version will always be available on the website. If you are not happy with our Policy now or in the future, please do not use this website to submit personal information to The AMR Narrative.

If substantial changes are made to our Privacy Policy in the future, website users will be informed via a prominent notice on the website.

Chris Shaffer

Chris Shaffer was a music, special education teacher, and high school principal for 45 years. At the end of his educational career, he was thrust into the world of AMR infections when a number of abdominal surgeries left him with an E-coli infection which failed to respond to antibiotics. After doctors in the USA left him with little hope for a cure, diminishing health, and a bleak prognosis, he set out on his own.

Chris found success in phage therapy at the Eliava Phage Therapy Center in Tbilisi, Georgia. With phage therapy giving Chris his life back, he has dedicated his retirement years to advocating for and helping raise awareness of phage therapy used for AMR infections. He tells the story of his phage journey in a book titled, Finding Phage: How I Partnered with a Friendly Virus to Cure My Deadly Bacterial Superinfection. His website, phagetherpyusa.com helps others learn to understand the healing power of phage therapy.

Demi Christofi

Demi is an Associate Scientific Director at a medical communications agency, with a background in microbiology and a longstanding focus on antimicrobial resistance. She holds an MSc in Microbiology, where she first became interested in the global challenge of resistance and the need to bring scientific understanding to wider audiences.

Demi’s career has centred on a simple but powerful belief: that how we communicate science matters. Her work focuses on making complex data clear, engaging, and accessible – whether for healthcare professionals, policy makers, or the patients most affected by infection and resistance. She has contributed to a wide range of AMR-focused projects, including educational programmes, congress communications and stewardship initiatives.

A central thread in Demi’s work is the importance of the patient voice. She is passionate about making sure real-world experiences of treatment failure, recurrent infections, and the anxiety surrounding resistance are not lost in the data. She believes that listening to patients and involving them meaningfully is essential for shaping more effective, human-centred responses to AMR.

Demi is also a strong advocate of the One Health approach, recognising AMR as a complex, interconnected issue that spans human health, animal health, and the environment. She is particularly drawn to efforts that move beyond siloed thinking and focus on practical, joined-up solutions.

In 2025, Demi joined The AMR Narrative as an Independent Advisor, where she supports the charity’s mission to centre communication, community, and inclusion in the global AMR response.

Outside of work, she is a Girlguiding unit leader and a qualified yoga teacher. These roles reflect her commitment to care, learning, and creating supportive spaces for others.

Andrea Hartley

Andrea has worked in health communications and campaigning for 3 decades. She is committed to fighting AMR through timely and appropriate communications globally,.

Andrea set up Skating Panda, the creative social and environmental impact consultancy, over a decade ago and drives its impact and growth. Focused on original and lasting public interest communications as well as issue strategy and advocacy, the Panda team has a track record of prompting tipping points in the status quo that drive better social and planetary outcomes.

Andrea’s combination of commercial marketing and development experience with deep issue knowledge have been sought by decision-makers at global summits, corporate and NGO board members, and have enabled her to set up multi-million fundraising platforms and push through policies that change and save lives. 

Andrea is Vice Chair of mothers2mothers, the world’s largest employer of women living with HIV, and a Board Director of Maymessy, a food poverty social enterprise.

A lifelong advocate for gender equality, she played a key role in establishing the UK’s Women’s Equality Party.

Esmita Charani

Professor Esmita Charani is a pharmacist and researcher investigating how we use antibiotics in different cultural and social contexts. She works with teams in the UK, India, and South Africa to develop research programmes investigating all aspects of antimicrobial resistance in human populations with a focus in hospital settings.

She has experience in communicating her research with patients and the public through various media including animations, blogs, and educational videos.