The AMR Narrative

Working with my doctors to reduce risks around Antimicrobial Resistance

Living with kidney disease and learning about AMR

My name is Gavin Schranz and I am 27 years old from Malta. I was born with a congenital kidney condition, and hospitals have been part of my life since childhood. Kidney disease has shaped many decisions, but infections have shaped my understanding of health and risk. I learned about antimicrobial resistance through experience, not from a textbook.

As a teenager I had major surgery to protect what kidney function I had left. Recovery was slow. After that operation I started to notice a pattern. Infections came more often and sometimes the antibiotics did not work as expected. A course that had helped before would help less the next time. Hospital stays became longer. I began to understand that the problem was not only my kidneys, it was also the bacteria that were becoming harder to treat.

I started dialysis and built new routines around treatment, studies and family life. I learned small habits that made a big difference. I became strict with hand hygiene and line care. I learned to finish antibiotic courses exactly as prescribed. I started to ask questions like, “Is there a culture result?” or “Which antibiotics still work?” and “Do we know if this treatment is the narrowest one that can treat the infection?”. These were not arguments with clinicians; they were conversations that helped me understand my care and protect antibiotics for the next patient.

Hospitalisations due to infections

Learning to advocate for safe and careful antibiotic use

Over time I realised that good care is a partnership. When a clinician explains why we are waiting for a culture, why an antibiotic is being changed, or why we are stopping one due to side effects, it builds trust. As a patient I try to play my part. I bring accurate medication lists. I ask about symptoms early. I respect infection control rules even when they are inconvenient. That shared responsibility is not dramatic. It is simply how we keep care safe.

While living through this, I studied digital health and completed a Master’s degree. My research focused on public education about antimicrobial resistance. I believe that how we use antibiotics is a behaviour issue as much as a medical one. We already know how to reduce risk, for example to wash our hands properly and keep wounds clean or to get vaccinated, use antibiotics only when needed, and only the right ones at the right time. None of this is complicated, but it needs to be part of daily habits at home and in healthcare.

I try to share what I have learned with peers and family. Antibiotics do not treat colds. Finishing a course matters. Diagnostics guide treatment and help avoid guessing. These simple points are not small, but they are the quiet work that protects these medicines for the next person who needs them.

A photo of my brother Philip and I in London, post op. My brother gave me the transfusions and is a match for a transplant.

A setback and what it taught me

In 2024 I began preparing for a transplant pathway, with the removal of one kidney in early summer 2025. That hope was interrupted by a severe infection and life-threatening bleeding in late summer of 2025. I spent three weeks in hospital and needed transfusions. Kidney removal surgery had to be postponed. My remaining kidney had to be embolised to control the bleeding. That helped the bleeding risk, but it created a new concern. If that kidney becomes infected, there is no blood supply for antibiotics to reach it. The risk of sepsis is real, and the safest plan is to remove the embolised kidney. I am currently waiting to have that surgery in London. It is a reminder that infections can change plans quickly and that timing matters.

That experience sharpened my focus on prevention. I became even more careful with hygiene and with reporting early symptoms. I asked clearer questions in the clinic like, “What signs of infection should send me to hospital today?” or “When should I expect culture results?” and “Which steps can we take to avoid broad antibiotics when a targeted option will work?”.
I found that my medical teams welcome these questions. They show that I want to work with them to protect both my health and the usefulness of antibiotics.

Concern and hope

Antimicrobial resistance affects many people, not only those with long term illness. It affects a parent recovering from a routine operation, a child with a urinary tract infection, or someone with a wound that does not heal. When antibiotics fail, the effects are practical and personal. It can mean extra days away from work or study. It can mean families reorganising their lives. It can mean fewer treatment options on a drug chart.

My story does not have a perfect ending yet. There are good days and hard days. I still face the risk of infection and sepsis, especially until the embolised kidney is removed. I still need dialysis, and I still hope for a transplant in the future. What keeps me going is the belief that small actions add up. A nurse washing hands before touching a line. A doctor choosing a targeted antibiotic instead of a broad one. A patient finishing a course exactly as prescribed. A family member learning that antibiotics are not a quick fix for every illness.

I am concerned about what AMR could mean for people who will need surgery, chemotherapy or transplants. I am hopeful because I have seen how knowledge changes behaviour. When we understand the problem, we act differently. Antibiotics are precious. I have learned to respect them, not fear them. I want them to work for me tomorrow, and for the next person who needs them. That is why I will keep asking questions and sharing what I have learned. Concern and hope can live side by side. They guide me as I move forward, one stumbling block at a time

Gavin Schranz

Gavin is a renal patient. He is dedicated to addressing real-world health challenges through medical innovation and digital transformation. He completed an M.Sc. in Digital Health at the University of Malta, his thesis focused on developing an e-learning tool to combat Antimicrobial Resistance. As a WHO Youth4Health Network member, Gavin has also championed patient-centered healthcare innovation.

Disclaimer: This story is shared with the permission of the individual(s) involved and is intended for educational and awareness purposes only. It does not represent medical advice and should not be used as a substitute for consultation with qualified healthcare professionals. While we encourage you to share the story in its original format, all rights are reserved by The AMR Narrative. Please do not reproduce, modify, or use any part of this story without prior written consent from The AMR Narrative. To request permission, please contact us here.

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Dr Marie-Anne Bouldouyre

Dr Marie-Anne Bouldouyre is an infectious diseases physician and hospital practitioner in Paris. Twelve years of clinical work in a suburban hospital shaped her understanding of access to care, patient relationships, and the daily reality of antimicrobial resistance.

Since 2022, she has led the Regional Antibiotic Stewardship Centre in Île-de-France and coordinates the national network, working with a multidisciplinary team to promote responsible antibiotic use and strengthen collaboration among healthcare professionals. She also continues to manage complex infections at Saint-Louis Hospital.

Convinced that antimicrobial resistance cannot be tackled by healthcare workers alone, she advocates for the active involvement of patients : understanding, questioning, and taking part in decisions about antibiotics. Their stories are essential to making this issue visible and concrete.

She is proud to collaborate with initiatives such as The AMR Narrative and hopes to foster similar projects in France to give patients a voice in this shared fight.

Dr Erva Cinar

Dr Erva Cinar is a London based paediatric resident doctor and clinical researcher with interest in infectious diseases.

She is currently completing a Master’s in Public Health at the London School of Hygiene & Tropical Medicine. Through the World Medical Association’s Junior Doctor’s Network (WMA-JDN) AMR Working Group, she engages in policy and advocacy on antimicrobial resistance and stewardship at global level.

Alongside her clinical and academic roles, she works with the Royal College of Paediatrics and Child Health (RCPCH) and the International Child Health Group (ICHG); leads on organising teaching resources and educational events to improve research skills for UK paediatric trainees and for global child health professionals.

Hamu Madzedze

Hamu Madzedze is a seasoned Zimbabwean journalist with over 15 years’ experience.

She previously worked for the Zimbabwe Broadcasting Corporation as a reporter and sub-editor, before establishing an independent website, 365HealthDiaries, which focuses on health and gender issues.

She holds a BA in Media Studies and a BA (Special Honours) in Communication and Media from the Zimbabwe Open University, as well as a diploma from the Christian College of Southern Africa.

Her work has been recognised with several awards, including the Global AMR Special Mention Award (2024), the Sexual Health Rights and Equity Fellowship Special Mention Award (2025), and the Merck Foundation Award (2024) for outstanding coverage of health issues, gender, infertility, and genital mutilation, where she achieved third position in the Online Category.

Hamu is passionate about addressing AMR through the media.

Jomana F. Musmar

Dr. Jomana Musmar is a distinguished global policy expert and proactive leader with over fifteen years of government experience in strategic planning, operational design, and policy execution. Renowned for simplifying complex topics with expertise and diplomacy, she has spearheaded innovative solutions to global health challenges, shaped impactful policies, and advanced national and international missions.

As the Executive Director of the Presidential Advisory Council on Combating Antibiotic-Resistant Bacteria, she established and led the council’s operations, liaising with over 600 experts, worldwide, across government, industry, and academia. Her efforts culminated in the development of critical recommendations addressing antimicrobial resistance and interrelated One Health issues, influencing both domestic and global health strategies.

In her tenure as Deputy Director of Strategic Initiatives for the Office of Infectious Diseases and HIV/AIDS Policy, at the US Department of Health and Human Services, Dr. Musmar oversaw the formulation and implementation of national health strategies for vaccines and a range of infectious diseases including HIV/AIDS and viral hepatitis. Her leadership and technical expertise facilitated groundbreaking policies during national emergencies, including responses to the COVID-19 pandemic, and initiatives to combat congenital syphilis and childhood vaccination disruptions. Dr. Musmar holds a Ph.D. in Biodefense from George Mason University, a Master’s degree in Biomedical Science policy and Advocacy from Georgetown University, and is a Lean Six Sigma Black Belt. Fluent in English and Arabic, she is a sought-after speaker and advisor, having represented the United States at premier global health conferences.

Her published works on antimicrobial resistance, pandemic preparedness, and national health security underscore her reputation as a thought leader and innovator in public health and biodefense.

Chris Shaffer

Chris Shaffer was a music, special education teacher, and high school principal for 45 years. At the end of his educational career, he was thrust into the world of AMR infections when a number of abdominal surgeries left him with an E-coli infection which failed to respond to antibiotics. After doctors in the USA left him with little hope for a cure, diminishing health, and a bleak prognosis, he set out on his own.

Chris found success in phage therapy at the Eliava Phage Therapy Center in Tbilisi, Georgia. With phage therapy giving Chris his life back, he has dedicated his retirement years to advocating for and helping raise awareness of phage therapy used for AMR infections. He tells the story of his phage journey in a book titled, Finding Phage: How I Partnered with a Friendly Virus to Cure My Deadly Bacterial Superinfection. His website, phagetherpyusa.com helps others learn to understand the healing power of phage therapy.

Demi Christofi

Demi is an Associate Scientific Director at a medical communications agency, with a background in microbiology and a longstanding focus on antimicrobial resistance. She holds an MSc in Microbiology, where she first became interested in the global challenge of resistance and the need to bring scientific understanding to wider audiences.

Demi’s career has centred on a simple but powerful belief: that how we communicate science matters. Her work focuses on making complex data clear, engaging, and accessible – whether for healthcare professionals, policy makers, or the patients most affected by infection and resistance. She has contributed to a wide range of AMR-focused projects, including educational programmes, congress communications and stewardship initiatives.

A central thread in Demi’s work is the importance of the patient voice. She is passionate about making sure real-world experiences of treatment failure, recurrent infections, and the anxiety surrounding resistance are not lost in the data. She believes that listening to patients and involving them meaningfully is essential for shaping more effective, human-centred responses to AMR.

Demi is also a strong advocate of the One Health approach, recognising AMR as a complex, interconnected issue that spans human health, animal health, and the environment. She is particularly drawn to efforts that move beyond siloed thinking and focus on practical, joined-up solutions.

In 2025, Demi joined The AMR Narrative as an Independent Advisor, where she supports the charity’s mission to centre communication, community, and inclusion in the global AMR response.

Outside of work, she is a Girlguiding unit leader and a qualified yoga teacher. These roles reflect her commitment to care, learning, and creating supportive spaces for others.

Andrea Hartley

Andrea has worked in health communications and campaigning for 3 decades. She is committed to fighting AMR through timely and appropriate communications globally,.

Andrea set up Skating Panda, the creative social and environmental impact consultancy, over a decade ago and drives its impact and growth. Focused on original and lasting public interest communications as well as issue strategy and advocacy, the Panda team has a track record of prompting tipping points in the status quo that drive better social and planetary outcomes.

Andrea’s combination of commercial marketing and development experience with deep issue knowledge have been sought by decision-makers at global summits, corporate and NGO board members, and have enabled her to set up multi-million fundraising platforms and push through policies that change and save lives. 

Andrea is Vice Chair of mothers2mothers, the world’s largest employer of women living with HIV, and a Board Director of Maymessy, a food poverty social enterprise.

A lifelong advocate for gender equality, she played a key role in establishing the UK’s Women’s Equality Party.

Esmita Charani

Professor Esmita Charani is a pharmacist and researcher investigating how we use antibiotics in different cultural and social contexts. She works with teams in the UK, India, and South Africa to develop research programmes investigating all aspects of antimicrobial resistance in human populations with a focus in hospital settings.

She has experience in communicating her research with patients and the public through various media including animations, blogs, and educational videos.